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Tucker Sharpe honored with Champion Children award

CONCORD – A 9-year-old Concord boy was recently honored as a “Champion Child/Outstanding Adolescent” at a state-wide event honoring young people who overcome serious, chronic health conditions. Tucker Sharpe was nominated by Rich Pezzillo, Executive Director of the New England Hemophilia Association (NEHA) for his spirit and resilience and then selected by the State Council for Youths with Chronic Conditions.  Rich wrote in his nomination:

Tucker, a nine-year old boy from Concord, has severe hemophilia – a rare bleeding disorder where the body is missing sufficient protein to form a clot. Tucker has raised over $20,000 for the New England Hemophilia Association’s annual walk, is a participant at NEHA’s Annual Family Camp, has advocated at the State house for issues important to those with a bleeding disorder, and represented New England during a national swimming competition for those with a bleeding disorder in Phoenix, AZ. Tucker is a true young advocate for our community and role model to many.

Each year the Council for Youths with Chronic Conditions honors several children and youths.  Most are nominated from school nurses and other professionals that engage regularly with children with serious health care issues.

Tucker Sharpe’s full nominateion by Rich Pezzillo

This letter serves as a strong recommendation for Tucker Sharpe, a nine-year old boy from Concord, New Hampshire. Tucker is an avid swimmer, advocate for his community, and a powerful example of how not to let a chronic condition define your life. Tucker is one of only 100 people in the state of New Hampshire living with severe hemophilia – a rare bleeding disorder where the body is missing sufficient protein to form a clot. If Tucker gets hurt, he bleeds faster, not longer. To prevent himself from bleeding, Tucker infuses this protein through IV self-infusions every other day to treat his condition.

Tucker and his parents, Tim and Brenda, are members of the New England Hemophilia Association (NEHA) – a regional non-profit that serves the individuals and families affected by bleeding disorders in all six New England states through advocacy, support and education. Each year, Tucker raises funds for NEHA during our annual Walk in June; raising over $20,000 during the last four years! In addition to the Walk, Tucker actively participates in NEHA’s Annual Family Camp in Moultonborough, NH, has advocated at the NH State house for issues important to those with a bleeding disorder, and represented New England during a national swimming competition for those with a bleeding disorder in Phoenix, AZ.

Tucker has educated himself on bleeding disorders, their causes, symptoms, and how to manage their effects. Tucker is a true young advocate for our community and role model to many.